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A Call-In for Allyship and Anti-Ableism in Intellectual Disability Research
A Call-In for Allyship and Anti-Ableism in Intellectual Disability Research
This article includes actionable items to foster anti-ableism and allyship in the IDD field.
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Building Relationships in Inclusive Research in Diverse Contexts
Building Relationships in Inclusive Research in Diverse Contexts
In this paper it examines the relationship and collaboration of someone with IDD working with a researcher. It discusses the variety in how alongside relationships are initiated and fostered over time.
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Conducting Qualitative Research with People with Learning, Communication and Other Disabilities: Methodological challenges
Conducting Qualitative Research with People with Learning, Communication and Other Disabilities: Methodological challenges
This paper talks about the inclusion of adults and children with IDD in your research.
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Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations
Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations
This paper provides lessons learned from the authors' experiences adapting surveys, in partnership with autistic adults, to create a set of recommendations for how researchers may adapt instruments to be accessible to autistic adults.
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Development of the AASPIRE Web Accessibility Guidelines for Autistic Web Users
Development of the AASPIRE Web Accessibility Guidelines for Autistic Web Users
This article presents guidance from the Academic Autism Spectrum Partnership in Research and Education (AASPIRE) on how to create websites that are accessible to autistic people.
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Dyadic Interviewing: A Technique Valuing Interdependence in Interviews with Individuals with Intellectual Disabilities
Dyadic Interviewing: A Technique Valuing Interdependence in Interviews with Individuals with Intellectual Disabilities
This paper discusses the dyadic approach in research and how it was used as a method of accommodation for people with IDD within their research process.
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Enabling Participation for Disabled Young People: Study Protocol
Enabling Participation for Disabled Young People: Study Protocol
This study looks at the positive and negative impacts of physical and social environmental factors in regard to community participation and mobility among young adults with disabilities.
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Guidelines for the Creation of Accessible Consent Materials and Procedures: Lessons from Research with Autistic People and People with Intellectual Disability
Guidelines for the Creation of Accessible Consent Materials and Procedures: Lessons from Research with Autistic People and People with Intellectual Disability
This article offers guidelines for improving consent materials and research protocols to support accessible and inclusive autism and intellectual disability research.
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Negotiating Research Participant Consent With, for and by Adults With Developmental Disabilities in Interaction With Their Third-Party Consent Providers
Negotiating Research Participant Consent With, for and by Adults With Developmental Disabilities in Interaction With Their Third-Party Consent Providers
This article outlines the process of third-party consent in research involving those with IDD and provides recommendations to mitigate ambiguities and make consent an ongoing process.
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Paradigm Shifts in Disability and Health: Toward More Ethical Public Health Research
Paradigm Shifts in Disability and Health: Toward More Ethical Public Health Research
This paper presents ideas to aid in the development of more effective, ethical means of facilitating participation by people with developmental disabilities in science and helping the reduction of health disparities.
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Relationships at Work: Integrating the Perspectives of Disability Partners to Enhance a Peer Navigation Intervention
Relationships at Work: Integrating the Perspectives of Disability Partners to Enhance a Peer Navigation Intervention
This study applied a peer navigator intervention designed to improve healthcare access for Medicaid beneficiaries with disabilities. The paper highlighted how peer navigators who are community partners with disabilities shaped and refined the intervention.
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The AASPIRE Practice-based Guidelines for the Inclusion of Autistic Adults in Research as Co-researchers and Study Participants
The AASPIRE Practice-based Guidelines for the Inclusion of Autistic Adults in Research as Co-researchers and Study Participants
These guidelines promote the inclusion of autistic adults as co-researchers and focus on being transparent about partnership goals, clearly defining roles and choosing partners. The guidelines also focus on creating processes for effective communication and power-sharing, building and maintaining trust, disseminating findings, encouraging community capacitation, and fairly compensating partners.
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Working with the Experts: Collaborative Research with People with Intellectual Disability
Working with the Experts: Collaborative Research with People with Intellectual Disability
This paper explores a collaborative study between a researcher and six individuals with intellectual disabilities. The paper highlights the value of partnership-based research and its implications for supporting the lives of people with intellectual disabilities.
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Accessing the field: Disability and the Research Process
Accessing the field: Disability and the Research Process
This paper reflects on the practical, ethical and conceptual dilemmas the researchers experience as researchers with a visible disability.
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